Rare disease fund needs S$200m at launch

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Rare disease fund needs S$200m at launch

(Updated: )

Chloe Mah's treatment for a rare genetic condition that affects her muscles costs S$40,000 a month before subsidies kick in. Estimating that there are 600 to 700 children with rare diseases, patient advocacy group Rainbow Across Borders says the rare disease fund that the Government is looking to set up needs S$200 million at the start for it to be sustainable.

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