A Letter To Myself - Father of a child with rare disease - The pain and worry has been ‘all worth it’
10 Jan 2025 03:54PM
28 mins
When a pin prick to draw blood for their newborn son didn’t stop bleeding for 36 hours, parents Geoffrey Toi and Amelia Teng knew something was very wrong with their child. At six months old, Christopher was diagnosed with Bile Acid Synthesis Disorder – and he is the only patient in Singapore with this rare disease.