Life, Unexpected
The Rare Disorders Society Singapore champions the cause of children with rare diseases. Kenneth and Patricia, who lead the society, navigate life with their daughter, Chloe, who has Pompe Disease.
Life, Unexpected - Support For Palliative Patients
The Rare Disorders Society Singapore champions the cause of children with rare diseases. Kenneth and Patricia, who lead the society, navigate life with their daughter, Chloe, who has Pompe Disease.
Life, Unexpected
This series aims to look at the field of paediatric palliative care in Singapore, through the stories of patients, their families as well as the village of caregivers that provide emotional, psychosocial and physical support to the patients — physicians, nurses and medical social workers.
From 2-year-old Nayla who has Trisomy 18 disorder to 39-year-old Edwin who has Duchenne Muscular Dystrophy, we delve into the unique challenges of their daily lives and witness the hope and resilience they carry with them.