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Life, Unexpected - Support For Palliative Patients

46:04 Min

The Rare Disorders Society Singapore champions the cause of children with rare diseases. Kenneth and Patricia, who lead the society, navigate life with their daughter, Chloe, who has Pompe Disease.

Life, Unexpected

Life, Unexpected - Support For Palliative Patients

30 Sep 2024 10:00pm

The Rare Disorders Society Singapore champions the cause of children with rare diseases. Kenneth and Patricia, who lead the society, navigate life with their daughter, Chloe, who has Pompe Disease.

Life, Unexpected

About the show:

Life, Unexpected Season 2 continues its exploration of paediatric palliative care, following families whose children live with life-limiting illnesses. This season delves deeper into the complex realities they face — from the challenges of caring for more than one child diagnosed with the same rare genetic condition, to the decisions parents must make when treatment gives way to comfort, and life draws to a natural close.

The series also turns its focus to the care providers behind the scenes. Through the HCA Star PALS team, we witness the emotional demands and quiet resilience required to provide palliative care to children in their homes.

Together, these stories offer a compassionate look at care, family, and life in the face of uncertainty.

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