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On The Red Dot: Undiagnosed - How we honestly feel about caring for our brother with special needs

11:52 Min

At 9, Jayden Tan was diagnosed with PURA syndrome, a rare genetic condition (there are only 200+ known patients worldwide). Now 17, he is non-verbal, has developmental delay and needs help with daily tasks like eating. His three sisters, aged 19, 16 and 14, share about what it's been like growing up with Jayden and the expectations of them as shared caregivers. They also respond to comments from viewers after their family's story was featured on #OnTheRedDot’s Undiagnosed series.

On The Red Dot: Undiagnosed

On The Red Dot: Undiagnosed - How we honestly feel about caring for our brother with special needs

08 Dec 2023 10:27pm

At 9, Jayden Tan was diagnosed with PURA syndrome, a rare genetic condition (there are only 200+ known patients worldwide). Now 17, he is non-verbal, has developmental delay and needs help with daily tasks like eating. His three sisters, aged 19, 16 and 14, share about what it's been like growing up with Jayden and the expectations of them as shared caregivers. They also respond to comments from viewers after their family's story was featured on #OnTheRedDot’s Undiagnosed series.

On The Red Dot: Undiagnosed

About the show:
On The Red Dot is CNA's long-running weekly programme that documents the stories of ordinary Singaporeans and celebrates their resilience, identity and sense of belonging.
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