rare disease

Showing 15 of 35

Always tripping or spraining your ankles? When ‘clumsiness’ could be a genetic nerve disorder

01/09/2026

Once excluded from PE, now a national athlete: Meet Singapore’s only female national wheelchair rugby player

29/08/2026

She spent decades alone with a rare genetic condition – now she's building a community for others like her

10/08/2026

She lost one son to a rare genetic disease – now her fourth child has it too: 'I want to hold on to hope'

28/01/2026

Life, Unexpected - Part 4: How Caregivers Of Sick Children Find Rest And Support

20/01/2026 47 mins

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Life, Unexpected - Part 3: Living Through The Same Rare Diagnosis Twice

19/01/2026 46 mins

Life, Unexpected - Part 2: Saying Goodbye To Our Daughter After 21 Years

18/01/2026 46 mins

Life, Unexpected - Part 1: When A Normal Child Starts To Behave Strangely

17/01/2026 46 mins

Rare but real: Bringing uncommon health conditions into focus

28/02/2025

‘I don’t want to die’: 20-year-old still dreams of becoming a doctor even as she battles incurable illnesses

22/02/2025

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A Letter to Myself Podcast: Father of a child with rare disease - The pain and worry has been ‘all worth it’

11/01/2025

A Letter To Myself - Father of a child with rare disease - The pain and worry has been ‘all worth it’

10/01/2025 28 mins

Life, Unexpected - Part 3: Support For Palliative Patients

30/09/2024 46 mins

The Stories Behind: The one-eyed tattoo artist who won't let a rare disease affect his craft

28/09/2024

The Stories Behind: This aspiring pilot was given a year to live at 23. He beat cancer and now aims to fulfil his dream

07/09/2024

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